Dancing With Cailyn

Every father with a daughter understands the almost supernatural pull that his little girl has on him. She holds in her fragile hands, the capability to crush or lift his spirit. She can make a grown man smile or cry…and sometimes both.

I remember long nights, taking careful steps up and down our hardwood floor as Cailyn laid with her head on my shoulder. She had digestion issues from birth and her “colic” would prevent her from going to sleep on her own for much of her infancy. This meant that I needed to walk, bounce, and hum to her ever so slightly for as long as an hour at a time. These were our first dances.

Eventually, we found that Cailyn slept on my chest better than anywhere else, which was fine with me. The only problem was that she had to be “walked” until she was totally asleep. She’d begin crying if I sat down a moment before she’d slipped away. At just a few months old, we could tell when she was asleep because she had begun to hum with me as we moved back and forth in the kitchen.

As I understand it, dependency on a person for sleep is one of the cardinal parent mistakes, outlined somewhere in chapter one of some imaginary manual. I felt, at the time, that I had justification for my actions and I really enjoyed the closeness. It creates a different bond…and may have been the best decision of my life.

You see, Cailyn was classified with “severe” Autism and, in case you’re unfamiliar with common symptoms of the condition, she would be likely to have a strong aversion to human contact.

If you’ve ever watched Cailyn and I interact, you would know the opposite to be true. If I’m laying on the ground, she’s going to jump on me and start to wrestle with me. Before bed, she wants to be tickled and expects “butterfly kisses” and “noozles” to be given liberally. Many times, when I kiss her and begin to pull away, she grabs my face and pulls my lips back to her cheek.

When I list things for which I’m thankful, this places at the top of the list. I honestly don’t know that I could survive this with a daughter that didn’t want closeness with me.

…and then there is the dance.

When she began to go to sleep on her own, the dancing began to happen during songs and at the end of movies. We’d watch something that would inevitably have music during the credits. I’d look at her and say “dance” and watch her eyes light up and she’d smile as she raised her arms to me. To a large extent, there is a lot of silliness in our dancing. She get’s thrown, dipped, spun, and flipped until we’re both worn out. It always ends in the familiar position of her head on my shoulder, with one of my arms supporting her weight and the other one holding her tightly.

We’d recently found a new dance song at the end of a VeggieTales video when the diagnosis came. “Beautiful” by Nichole Nordeman took on a different meaning, one night while Amber was at work. I just remember looking up videos of children with Autism, on the laptop as her video drew to a close. It was devastating to wonder if Cailyn would ever be capable of the father/daughter exchanges that I so anticipated. My concentration was broke when she came over to get my attention. I picked her up, but wasn’t in the frame of mind to be silly. She apparently wasn’t either because she immediately dropped her head to my shoulder.

It started with just me holding her, until the words started to get to me. As we rocked back and forth, I held her more tightly. I began to pray over her, which led to tears and a full blown cry. I began praying out loud. I’m sure I promised God everything I had by the end of that song. If so, I meant it. In return, I got just enough to make it to the next day. Cailyn pulled back and looked at my eyes. She must have noticed that things were different, because she touched the stream on my cheek and just smiled. I couldn’t help but smile back. The moments weren’t going to be what I always envisioned, but they would still tug at my heart.

We still dance. Although sometimes our current situation takes over the context of the song and I find myself emotional, it’s usually a great escape. In our dancing moments, it’s just her and I. All the worries of work and the world fade away. When I hold my baby girl, it feels like she’s a newborn again and I’m just walking her through the kitchen before bed. It’s a feeling of a more innocent and naive time. A place where Autism didn’t exist,

Dancing with Cailyn, after all, shouldn’t be possible.

Cinderella – Steven Curtis Chapman

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2 thoughts on “Dancing With Cailyn

  1. Darlene says:

    what a wonderful precious bond…our little fellow Andrew does not make phyical contact he very much listens to his mother and enjoys her kisses and when he hears her excitement and feels her hugs and kisses he smiles……he SMILES

    you have a blessed way with words, I would read any of your books when you decide to publish.

  2. Liz says:

    I just LOVE how you put your life with Cailyn into words. It’s also like you’re talking about our autism experiences as well! Thanks for sharing all you do…

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